Posted 1 day ago

Four more spaces left and I won’t be taking anymore orders for this event!!!! 🚨🚨🚨🚨🚨 @teamtunez Amorawa Ankara affair on August 17th. Its a day party!! Last day to put place your order is July 31st🚨🚨🚨🚨

Posted 2 days ago

My Parents are Dead and My Sister is Disabled






On May 28th, my sister, Edna, turned 31.


Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 


Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 


That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 


ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.


May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 


Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 


Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 


YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 


Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 


For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 


But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.


She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 


So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.


Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 



Twitter: @EisforEdna 

This made me cry



This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.


Wowww, you are an inspiration Jeanie. O have a 10yr old brother with cerebral palsy. It is really unfortunate how little the government will do to help out even with all the laws in place to help them. I know the countless times my mom has cried out of frustration because she doesn’t want us to stop our lives to help her out but at the same time she still needs the help.

Continue doing what you’re doing Jeanie! I hope one day soon this post will gain you the attention and awareness you need.

(Source: )

Posted 4 days ago


“I had cancer when I was sixteen. But honestly, it was so long ago that it’s almost like it happened to a different person. It doesn’t color my interactions or anything. But I’m a dancer, and I do think it’s affected my dancing. There’s this interesting tension between training and striving to control every movement of your body, and realizing that at any moment, your body can rebel against itself in a way that’s completely out of your control.”


Posted 1 week ago

Off and on the runway, this dress looks fabulous…a Chidex Designs original! Kinda retired this dress already but might design another rendition of it, what do you guys think?

#ChidexDesigns #chidexdesignsoriginal #chidexdesignsdress #chidexdesignswomenswear #womensfashion #womenswear #fashion #highfashion #eveningwear

Posted 1 week ago

2nd Ankara event, join @dukeconcept for MAMA AFRICA!!! Orders for this event ends on August 7th, put on yours now!

Posted 1 week ago

🚨🚨🚨Taking orders for @teamtunez Ankara event on August 17th!! Cut off date is July 31st!!

Posted 2 weeks ago

Casual wear #ChidexDesigns #ANightofMysticalFantasy
#everydayafricanfashion #fashion #fashionshow #africanfashionshow #africandesigner #africanfashion #womensfashion #womenswear #fashion #africanprint #nigeriandesigner

Posted 2 weeks ago

#ChidexDesigns! @_bam_bee_ looking into that camera like 😎😌😏 I know am fly, no need to say it lol

Posted 2 weeks ago











Quick, reblog this everywhere so we can learn and grow as a species!

Exactly the type of response guys should give when girls say no to anything, from dates-to sex.


Posted 2 weeks ago

Girls who reject you but try and spare your feelings be like.






"you’re a nice guy, you deserve someone who feels the same way"


 "I can’t force myself to feel a certain way about someone" image

"I just wanna focus on myself"


Yall sweet though but sometimes I gotta hear a flat out “no”

Except when a flat out “no” gets the girl fucking murdered. Maybe there’s a reason why we have to say this shit.


tell da truff

Some don’t even hear you when you say no

Posted 2 weeks ago



“this leaves men confused and unable to pigeonhole you. What they are forced to do instead is… take you seriously.”

I will never not reblog

Forever reblogging


(Source: un-usuall-m3mory-x3)

Posted 2 weeks ago

Couldn’t get a good picture where we both look normal lol …proud to have been a part of KOR Foundation’s gala last night. If you know me, then you know how I feel when it comes to giving children everything they need in order to prosper in life. I am happy to have been a part of such an event. I hope everyone got a little inspired to do a little more in their community because I was. A little goes a long way!

For more information or to make a donation for anything please contact @stanley_kor950 for more details

Posted 2 weeks ago
No-one will love you exactly the way you want them to. You just have to let them do their best.
Unknown (via onlinecounsellingcollege)

Posted 2 weeks ago


this looks like something out of a horror movie like imagine that thing tunring around and having a people face and walking on two feet

Oh noooo 😭😭😭



this looks like something out of a horror movie like imagine that thing tunring around and having a people face and walking on two feet


Oh noooo 😭😭😭

(Source: tindink)

Posted 2 weeks ago



Lol my life

(Source: sothoros)